Life is so often unpredictable. Many
years ago, my dad shared with me an interesting thought. "If I
had the opportunity to see the future in a
crystal ball, I would most likely pass on the opportunity."
I was younger and thought his comment to be pure folly. Today
I see the wisdom of his words. Given the same opportunity, I
can now say that I would pass on such an opportunity as well.
On November 11, 2010, the course of my life was forever
altered. Not a gradual changing of life's direction … not a
slowly opening door, but a breathless, terrifying, uninvited
spin through a revolving door.
It was on that fated day that I was struck by a teenage driver
while I was cycling and catapulted into the new, strange and
often unpredictable world of traumatic brain injury. No one
asks for a brain injury. A brain injury is just about the last
thing you think about until it becomes the only thing you
I was rushed by ambulance to the nearest trauma center, my
wife, Sarah, following the speeding ambulance in her car. A
local police officer appeared at the trauma center to take my
statement in case it was my fate to succumb from my injuries.
Over the weeks that followed, the extent of my brain injury
became clearer. My new normal included speech challenges
including aphasia and stuttering. Memory challenges became
almost comical, and PTSD with its symphony of symptoms became
my constant companion. We can add to that incessant tinnitus
and a good case of vertigo that robbed me of the ability to
The first year of my life as someone with a brain injury was
the hardest year of my life.
At the one year mark, I knew it was time to get as well as I
could. Though everything I had read spoke to the fact that
brain injury recovery was life-long, I harbored a secret that
perhaps I was going to be different. I was going to be that
one in a million who came back from a brain injury as if I had
never been hurt.
As time passed, it became clear that I was in for a marathon
and not a sprint. My attitude shifted. No longer was I hoping
to "beat" my brain injury. Instead, my goal became to learn to
"coexist" with my disability. That goal exists to this day.
My first step in this process was to learn more about exactly
how I was compromised. By getting a real feel for what was in
need of repair, I could better move toward a new wellness.
I was lucky to have insurance. I can’t imagine what I would
have done without the freedom it gave me. When it became time
to find a competent neuropsychologist, I was able to do so
based on input from other members of the TBI community. I was
not relegated to finding an "in network"- or
insurance-approved doctor. I had the freedom to choose based
on proficiency alone.
At the conclusion of my neuropsychological testing, my wife
and I had a final meeting with a trusted doctor. It turned out
that for many of the sections of the neuropsychological
testing, I scored at the bottom of the scale; the doctor
gently told me that I was permanently disabled. The insight
that his testing offered was invaluable.
Looking back now with the benefit of a couple of years of
hindsight, he was no doubt correct. I was disabled. But that
was just a snapshot of how I was at that period of time in my
recovery. Recovery is indeed life-long; we know that. But we
also know that neural plasticity is an amazing thing.
I took my newfound information and started to formulate a
recovery plan. One of my biggest decisions was to change my
attitude. Never will you hear me say that I "suffered a brain
injury." Never will I have the attitude that I was the
"victim" of a cycling accident. Words like "suffering" and
"victim" are mental and emotional barriers to moving forward
in life. They restrict my forward movement.
The reality is this: if you have a heartbeat, you've had
unpleasant events come to pass in your life. Children get
sick, parents age, jobs are lost, and cyclists occasionally
get struck. Part of the human condition is that life unfolds
for all of us — sometimes in ways we plan, other times in ways
we could never have imagined. I am not exempt, nor are you.
The bigger question was what was I going to do to make the
most of the rest of my life.
My mind was quickly made up. Though I might never get back to
100 percent, I became driven to get back as close to that as
Like snowflakes, every brain injury is different. There is no
"one size fits all" treatment protocol. Rather than looking at
my brain injury as a single challenge, I opted to look at my
injury as a series of individual symptoms. In essence, I broke
it down to a much simpler form.
I was not just someone who had sustained a brain injury. I was
a person who was trying to find an effective way to live with
tinnitus, to live with a memory that so often failed me, to
relearn to speak with a speech impediment. While learning to
live under the enormous weight of a brain injury may seem
overwhelming, learning to find compensatory skills for
individual challenges was much easier.
I made the decision to take smaller bites out of the apple.
And it's been a game-changer. In fact, there are times there
is almost an element of fun to it all. That is a far cry from
where I was a few months out, thinking that life as I knew it
In my book, Metamorphosis, Surviving Brain Injury, I chronicle
the trial and error in developing new compensatory strategies.
For example, my initial solution to my memory challenges was
to use those ever pervasive yellow sticky notes. Not the paper
ones, but — being a bit of a tech guy who happens to have
pathetic handwriting — the ones you can litter upon your
But sticky notes — paper or online — are only good if you read
them. One day, a full month after I decided to use the sticky
note methodology, something on my PC screen caught my eye.
Looking closely, I realized that I had not even looked at my
notes for weeks. Sitting right in front of me were scheduled
tasks, all uncompleted, gathering digital dust. So much for
digital sticky notes!
As memory problems remain challenging, I needed to find a new
method for moving as much of my memory outside of my brain as
possible. Once I figured out that I sync my cell phone to my
Google calendar, I found my solution. Soon, it was second
nature for me to add appointments and events to my calendar.
Unlike the sticky notes I put on my PC — which became as
unnoticeable as old wallpaper — every time I turn on my phone,
my reminders are in my hand and are now rarely forgotten.
Symptom by symptom, I found solutions that worked for me. My
solutions didn’t make my deficiencies disappear, rather they
became compensatory strategies that allowed me to coexist with
While many of these strategies are unseen by most, there are a
couple of cases where others benefit from my new strategic
approach to life.
Virtually every day since November 11, tinnitus robbed me of
any real silence, any peace. To deal with this, I developed a
compensatory strategy that I fondly call “Ear Conditioning.”
Think about the hot summer during which we try to stay cool
with air conditioning. Moving from one cool oasis to another,
we find respite for discomfort. Akin to this, I made various
rooms in the house have “ear conditioning” like our bedroom
with a white-noise machine on my dresser. Now, the soft chirp
of summer crickets at night blot out the constant drone of my
As for PTSD, my wife and I found that our world became smaller
because we spent more and more time at home. But we have tried
to make the most of it. Since my crash, new grape trellises
adorn our landscape, flowers of all varieties blanket our
yard, and a new love called “aquascapes” has allowed me to
bring “ear conditioning” to our yard. By our back patio sits a
fishpond with a waterfall, the soft gurgle of our backyard
stream a welcome distraction. I installed that one the first
year after my brain injury. I've come to find that water
gardens and their accompanying relief are like potato chips,
you can’t have just one.
Year two found me adding a small reflecting pool, spitting
frog and all. Yes, a bit more auditory bliss from that one.
And just this past summer, I got “the itch” again and added a
nice fountain to our back deck. You no doubt see where I am
going with this.
People who don’t know I have a brain injury might simply
admire our garden with its myriad waterscapes. But for me,
these serve as a coping strategy that helps me live a
In the three years since my crash, life has slowly taken on
new form. Acceptance replaces fear. Sustainable compensatory
strategies build confidence. And life, though vastly different
than life before my brain injury, becomes again worthwhile.
So much of my life these days involves advocating for those
whose life has been impacted by a brain injury. While nothing
can take away the challenges that come with trying to rebuild
a life after brain injury, knowing that others have been
helped by the experiences I've had makes this new life a life
of real and meaningful purpose. And for that, I am grateful.
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